My young adult life has proven to be a bit more difficult than I had expected.  I have been plagued with chronic pain that has come with my delayed diagnosis of hip dysplasia and Ehlers Danlos Syndrome. I have also recently lost my father to a terrible brain cancer.  Here, I document my journey through life challenges while doing my best to focus on the gifts I have been given: dancing, creativity, art, friends, family and most importantly love. Thank you for joining me!


My Dad lost his battle with a brain cancer called Glioblastoma on February 5th, 2019. I have decided to open an etsy shop in his memory.  50% of the proceeds will be donated to the Glioblastoma Foundation. Check it out here: NeuroHats

Check out more of my hip story on these blogs: 

  1. Boston Children's Hospital: A friendship formed in Dance

  2. Boston Children's Hospital: Dancing my way through pain 

  3. Girl Fit Physical Therapy: Persevere And Overcome 

I wouldn't be where I am today if it weren't for the community of support that I've built for myself. This includes my friends, my family, my incredible care and support team at both Boston Children's Hospital and Girl Fit Physical Therapy, and the Boston dance community.  To everyone who has joined and supported me through this journey, I can't thank you enough.  I am constantly reminded to never give up.  

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© 2018 by NICOLE ZIZZI.